The Ministry of Community Development issued Resolution No. 7 of 2018 declaring the Emirates Rare Diseases Society as a public benefit association, headquartered in Dubai, and whose area of ​​activity is the United Arab Emirates. The association seeks to raise awareness and educate members of society, in addition to those suffering from rare diseases and their families, and to contribute to providing psychological, moral and social support to them, in addition to raising awareness and introducing rare diseases and spreading awareness about them among specialists and researchers in the field of health care in the Emirati community. It also works to encourage and support scientific research in diagnosing Rare diseases and their treatment are carried out in cooperation with government agencies (local and federal) in the country, in addition to cooperation with civil society institutions and international organizations in the UAE and abroad.

The association aims to provide moral support to patients with rare diseases and their families, assist them, communicate their voice to decision-makers, communicate with similar international associations and institutions, increase the exchange of scientific knowledge about rare diseases, focus on awareness and education programs to limit their spread, introduce how to prevent and treat them, and contribute to the development of appropriate public health policies. It is worth noting that the Emirates Rare Diseases Society will present. Its services are provided to all emirates and regions of the country and to all citizens and residents therein who are affected by these diseases.